Camp Cosmos 2019
In 2018, we were thrilled to launch Camp Cosmos, the only summer day camp for children with craniofacial differences and their families in San Diego county (and surrounding regions). The objectives were to promote disease awareness, networking, trust between the patients and their treatment teams and self-esteem building through therapeutic activities. We had 195 registered participants from 45 families and 80 volunteers!
This summer, Camp Cosmos will take place on Saturday, July 27th from 9am to 3pm at Dan MicKinney Family YMCA in La Jolla!
There are no official community-building events for children and families affected by craniofacial differences and disfiguring injuries in Southern California. Many of these families fall below the poverty line, or at least face significant medical bills, and/or have limited English-language skills and resources to navigate support and information systems. Many patients have special needs because they have syndromes that result in limited mobility, dexterity, vision, hearing, cognitive ability, etc. Some patients’ syndromes are relatively uncommon with a high instance of other comorbid issues. Often, these families are left to find information about their children’s conditions and needs on their own, including which specialists, surgeons and schools will be able to help them most effectively.
Our goal is to provide positive therapeutic experiences for these vulnerable children and families, empowering them to build a network of support with each other and with treatment teams – all in a safe and fun environment.
A testimonial from a parent of a camper: “Camp Cosmos was the first community event we have ever found for kids with craniofacial differences. My son had been embarrassed of his scar. He didn’t want people to see it or know about it….After camp Cosmos he really bloomed. All day at camp he kept saying “Mom, look, he/she has a scar just like mine!” He had so much fun, felt so special and a part of a bigger group….The kids helped each other, no body pointed at his scar or whispered. For me, it meant a lot to know that I wasn’t alone. The parents who were there had been through what we have. They know what it like to sit beside your child’s bed in the hospital, to hardly sleep through recovery and worry about peer judgments and self esteem. We are strong for our kids but it’s traumatic for us too. It was a powerful day for us.”
Special Thanks to Title Sponsor The Donegan Burns Foundation!