Relevant Resources

One of our most pressing goals is to help support and bring together the communities of patients with congenital and acquired differences and their families.  To that end, we have compiled the following resources which may be relevant to this community. If anyone has additional recommendations, please contact us at info@connectmed.org!

 

GENERAL RESOURCES

 

BULLYING RESOURCES

  • Pacer Center: National bullying prevention center which provides resources and actively leads social change to eradicate bullying: https://www.pacer.org/bullying/
  • #choosekind: Choose Kind is a national movement inspired by R.J. Palacio’s novel, Wonder. Teaching student to be accepting of differences and choosing to act kind toward others: https://choosekind.tumblr.com
  • Beyond Differences’ No One Eats Alone: this  is a stand-alone event from Beyond Differences that takes place during lunch at school to encourage students to be inclusive and sit with new friends and classmates: https://www.nooneeatsalone.org
  • KidsHealth: Nemours Children’s Health System’s guide to bullying with helpful talking points, videos, and advice: https://kidshealth.org/en/kids/bullies.html 

 

EDUCATIONAL RESOURCES

 

National Institute of Dental and Craniofacial Research
The mission of the National Institute of Dental and Craniofacial Research (NIDCR) is to improve dental, oral, and craniofacial health.
Website: www.nidcr.nih.gov

 

The Smile Train Online Medical Cleft Library

This excellent new resource has instant access to full transcripts of numerous articles and studies related to every major cleft issue. Great resource for both patients and professionals.

Website: www.smiletrain.org/cleft-resources/best-practice-resources

 

Other organizations and resources in the United States and around the world that support craniofacial differences from birth, accident, or disease:

 

FACE IT: Facial Disfigurement and My Fight for Face Equality

Written by James Partridge

An honest memoir of the battle after severe facial burns; it’s a practical self-help guide for anyone with a facial difference and a manual for health professionals trying to help them. And, finally, it’s a manifesto for face equality, rooting out the stigmas of face-ism that oppress us all… and urging new face values in our 21st century world.

Available Here

 

Children with Facial Difference: 

A Parent’s Guide

Written by Hope Charkins, MSW. Excellent resource for parents to help them cope with medical, emotional, social, educational, legal, and financial challenges presented by facial differences of their children. Order from Amazon.com if you cannot find it in your local bookstore.

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